Lazy blogger

Hey hey! Just checking in to confirm that yes, I am still alive, but boy am I a great big ball of sleepiness.

These last couple of months my Crohns has kinda kicked my arse a little bit……ok a lot. I had it appear in my throat which is a pure mother plucker, then, as I got that under control I started to struggle to walk properly and lift my right leg. Weird right? Well when I saw my gastro on 13 April he said there was a risk that it could be an abscess. Be still my beating heart.

Anyway, after one CT scan referral, a giant thromby on my part over no one telling me they wanted to pump a load of contrast dye in my veins, then a different hospital and an MRI scan, I am happy to tell you I have no abscess! It’s my stricture which may not be scarring (bonus for my mammoth appetite) which indicates that I’m in, yet another, major flare. Anyway on a happy note I started medication today, I’m being built up slowly on it and am extremely hopeful that this will work now instead of the damn steroids.

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So that’s my grumble over, and an explanation as to why I’ve been so quiet, I’ve just been absolutely drained with everything and have been trying to just relax. I started reading the first Twilight the other night too but that’s a whole other blog!!

Peace out my little cherubs xxxxxx

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My week of being a zombie!

I’m actually pretty good at it, not that this is a surprise, when I get overly tired which can happen quite a lot I tend to go through life in a trance haha the week becomes a blur….and that’s pretty much what’s happened this last week!

 

So last Monday I got told that I can reduce my steroids, whoooopa, and as of tomorrow I’ll only be on 2 a day, 10mg! In 5 weeks time I’m back again to get started on some medication. Now, I’ve fought this for the last 3 1/2 years but I’m finally at the point where I want to give my body a chance to heal, to have some happy years in remission and a sense of normality so here’s hoping that it agrees with me. Oh, and that, apart from the many scary side effects, you know the usuals, liver damage, skin cancer, nausea, my bone marrow being affected there’s the whole staying out of intense sunlight. I always use factor 50 anyway but you try finding sunBLOCK over here in the UK, it’s like hunting for gold on a farm, pointless!! So hopefully factor 50 will be enough because my mum gets married in Cyprus in August, outside, at 12 noon. Yes. Midday heat and I’m a bridesmaid haha plus side, we know the photographer so any large red blotches appear then he can airbrush me up baby 🙂

 

Between hunting for sunblock, planning holiday outfits (yes, I know planning outfits 6 months ahead is OCD at it’s finest but positive thinking and all that!) we’ve been trying to sort out product labels, containers, oils, sorting the business website, I AM EXHAUSTED!! We had a nice meal out on Sunday though at The Red Hot World Buffet where my steroids could eat their little heart out, I was just a mere bystander haha seriously, I had 3 plates of starters, 1 plate of ‘mains’ which consisted of 3 different meals all seeping into one, bit gross to look at but tasted immense, and 2 plates of desserts!!! Yes, the all you can eat buffet was a HUGE success, so much so that we’re all looking to go back again soon for the night buffet, the sushi station wasn’t open for lunch and my mum and I are huge sushi fans so, it has to be done right?!

 

Oh, and lastnight I managed to lose a lense out of my glasses yesterday too, luckily I have contacts but my eyes are officially knackered. I feel like someone has blasted a hairdryer at them whilst holding them open with matchsticks. Ouch *whimpers*

 

That kind of takes us back to today, I’ve been a very bad blogger I know, I’m sorry but I have been very busy…..and feeling very sorry for my tired self haha but I’m back and currently full of chocolate frozen yogurt which I’m guessing may have more E numbers in that I normally find acceptable but I REALLY needed them (she say’s whilst getting ready to watch Obese: A year to save my life USA).

 

Anyway, ciao for now xoxo

GOOD MORNING!!

Do you ever wake up some mornings when the sun in shining and think, yep, today’s gonna be a good day just because the sun is out! Sunshine makes me feel so much better about everything. I mean, the trees are blowing like crazy so I’m guessing it’s actually really cold out but, just the sun coming through my window made me happy!

 

Today is gonna be productive (she hopes!) I’ve been up an hour, had my breakfast, which was THE SHIZZLE by the way, taken my steroids, poured a pint of juice to have with my glucose powder (the docs want me to fatten up so I can fight the relapse), had a quick look on Pinterest ready to return again for recipe ideas, fed my cat and now I’m blogging! All before 9.45am! HIGH FIVE!

 

Now, because I’m on the steroids I’m eating like a monster, seriously, my mum says I’m just like Pacman when I’m on them, if its sat in my path it will be eaten. So yesterday we did the mother of all shops. £130 later, we have the fullest fridge and cupboards in the land. But how depressing is it that you have to spend so much money on food to be healthy. It was reading VodkaandMotherhoods blog this morning that made me think hell, healthy eating costs a s***load wherever you live. But, and I’m sure she’ll agree, why would you wanna eat any other way. She’s an amazing example in my opinion, too many people in the UK cop out and go buy really cheap and nasty freezer products, I’m sure it’s the same in the US. There’s enough diseases going round without adding heart disease/diabetes to your list. Just saying. So, I devised a plan to help me with my snackage issues, yes, I’m that lame, but it really helps me to make lists, I’m kind of a list fiend and like to check things off all the time, though this list may be the future if you ask me……

 

 

I also get really bored really easy with the same old boring breakfasts, so this morning I had a pot of yoghurt, a couple of tablespoons of blueberries, some agave drizzled on top, and, wait for it, 2 crushed ginger nut biscuits! The biscuits just added the crunch, texture and extra pizzaz if you know what I mean? And now I’m full without feeling stuffed, bloated or, heaven forbid, STILL HUNGRY!!

 

Shrimps and rice for lunch today, I’m off to Pinterest some possible dressing recipes, and probably Google too if I’m honest, though my Pinterest addiction is getting out of control haha

 

Wish me luck!!

 

XOXO

What a week!!

Wow, I can honestly say this week has been crap! The boyf and I decided to boycott Valentines Day in the end, we bought cards but it just seemed stupid to go buying something for the sake of it, plus most things in the shops are literally pure cheese and really cheap looking. I still want to do the envelope idea though…..maybe for his birthday.

So Tuesday came and boy was I ill. Like, I literally thought I was dying. Ok, maybe I exaggerate there, but I honestly thought a hospital visit was imminent. The steroids cause all kinds of nasty side effects, one being night sweats/high temperatures but I woke up Tuesday with an awful fever. I literally had to crawl out of my bed to the bathroom, hunt out some old bottled water from my dresser and crawl back in to bed again. Mum had to grab me some fresh water so that I could actually function, food was not an option unless I wanted to be in agony because the emptiness in my stomach was too much to bear (steroids also cause serious munchies, you’d think that’d be fun but when hunger hits you don’t have time to waste, it’s agonising). Eventually I made it downstairs and throughout the day I took paracetamol to help my temperature. Back in 2010 I ended up in A&E because of the steroids, I had the same fever but I was shivering too, the started to treat me for meningitis as a precaution because my immune system was so low but luckily, it was an infection with the Crohn’s and the steroids had just made me crash after a boost. This meant that this time I had an idea of how to handle what was happening, luckily, because this was the third time it had happened.

All I wanted to do was sleep Tuesday night, just a nice nights sleep, but at 1.41am it was time for full on projectile vomiting (I’m really sorry if you’re eating!) This time I was convinced I’d end up in A&E again, so curled up around my shower until the world stopped spinning. Luckily I dozed and come morning I felt much better, I just felt like I’d been kicked around my local town.

You’ll all be pleased to know though that I’m getting back on track now, it’s still a nightmare having more side effects than ever with the steroids but hey ho, as long as my throat calms back down again I’ll suffer for the cause, I doubt I’ll be on them for more than another couple of weeks now so. HAPPY DAYS

 

XOXO

Let the eating commence!!

Well, soon anyway! I went to have the endoscopy today and I was brave and wasn’t sedated again, which meant I could drive home too, always a bonus. I won’t bore y’all with the details but, meh, the doctor was right and it is the Crohn’s. On the plus side, this means that I’m not adding to a list of ailments, don’t you hate when that happens, like when you get a cold, and then you get achy joints, then headaches, you feel like an absolute donkey don’t you haha. So anyway, I’m on the steroids again which means that soon enough, I’ll be able to eat without sobbing and best of all, I’ll be able to get resume eating these lights of my life….

CAN.NOT.WAIT

Have I ever mentioned my addiction to Original Glazed? Seriously, is there anything better than a hot Original Glazed? Even a couple of days down the line, if like me you tend to HAVE TO buy a dozen at the time, I mean what’s the point in buying one, it’s just not cost effective is it 🙂  So, even when they’ve gone a little bit hard, just pop them in the microwave for about 5-10 seconds MAXIMUM depending on how super your microwave is, and hey presto, they’re as good as new.

I’ve also been spending a lot of time stalking Pinterest today in the hope of inspiration for something exciting to make in readiness for my feeling like Wonderwoman…I’ve shortlisted a few things but I’ll keep you posted!

I’ll love you and leave you now, but will leave you with an amusing picture I found on Facebook today…..

 

 

Over and out

Xoxo

 

Meeeeeeeeep

Well, I know I haven’t mentioned it on here but I have moaned my head off on Twitter about the sheer hellish heartburn I’ve been going through. We’re on day 21 now just to keep y’all in the loop! But, as I’ve very briefly mentioned before, I have Crohns which can trigger other kinds of nasties, so I thought I might just have a badass case of GERD (Gastroesophageal Reflux Disease). I’ve been drinkg Peptac liquid like it was pop, although I can’t stand water at the mo because of the immense pain. Anyhooo I managed to get in to see my Gastro doc yesterday, turns out he thinks that the Crohn’s may have decided to sit its merry little self in my oesophagus (my words there obviously, not his!) So, to say I’m totally fed up is the understatement of the year, so far. Tomorrow I have to go back for an endoscopy, for anyone who has had one of these before, you’ll feel my pain, anyone who hasn’t, pray you never have to. I wasn’t sedated last time so I’m going for the lot this time, sedation, numbing spray, if they offer it, I’m taking it. HELLISH. I am hoping that it is just really really bad heartburn though, we will see in the morning I guess. Wish me luck!!

To keep my chin up though, and so that I’m not leaving you all on a depressing note, I beg of you to watch the clip I’m about to post below. This is a dating show we have in the UK which is usually funny anyway, but this week was SPECTACULAR. It’s a 12ish minute clip but you will not believe this guy, he is…..well words failed me to be fair but boy did the nation laugh. At him, not with him.

Until tomorrow peeps. Ciao xoxo