Lazy blogger

Hey hey! Just checking in to confirm that yes, I am still alive, but boy am I a great big ball of sleepiness.

These last couple of months my Crohns has kinda kicked my arse a little bit……ok a lot. I had it appear in my throat which is a pure mother plucker, then, as I got that under control I started to struggle to walk properly and lift my right leg. Weird right? Well when I saw my gastro on 13 April he said there was a risk that it could be an abscess. Be still my beating heart.

Anyway, after one CT scan referral, a giant thromby on my part over no one telling me they wanted to pump a load of contrast dye in my veins, then a different hospital and an MRI scan, I am happy to tell you I have no abscess! It’s my stricture which may not be scarring (bonus for my mammoth appetite) which indicates that I’m in, yet another, major flare. Anyway on a happy note I started medication today, I’m being built up slowly on it and am extremely hopeful that this will work now instead of the damn steroids.

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So that’s my grumble over, and an explanation as to why I’ve been so quiet, I’ve just been absolutely drained with everything and have been trying to just relax. I started reading the first Twilight the other night too but that’s a whole other blog!!

Peace out my little cherubs xxxxxx

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My week of being a zombie!

I’m actually pretty good at it, not that this is a surprise, when I get overly tired which can happen quite a lot I tend to go through life in a trance haha the week becomes a blur….and that’s pretty much what’s happened this last week!

 

So last Monday I got told that I can reduce my steroids, whoooopa, and as of tomorrow I’ll only be on 2 a day, 10mg! In 5 weeks time I’m back again to get started on some medication. Now, I’ve fought this for the last 3 1/2 years but I’m finally at the point where I want to give my body a chance to heal, to have some happy years in remission and a sense of normality so here’s hoping that it agrees with me. Oh, and that, apart from the many scary side effects, you know the usuals, liver damage, skin cancer, nausea, my bone marrow being affected there’s the whole staying out of intense sunlight. I always use factor 50 anyway but you try finding sunBLOCK over here in the UK, it’s like hunting for gold on a farm, pointless!! So hopefully factor 50 will be enough because my mum gets married in Cyprus in August, outside, at 12 noon. Yes. Midday heat and I’m a bridesmaid haha plus side, we know the photographer so any large red blotches appear then he can airbrush me up baby ūüôā

 

Between hunting for sunblock, planning holiday outfits (yes, I know planning outfits 6 months ahead is OCD at it’s finest but positive thinking and all that!) we’ve been trying to sort out product labels, containers, oils, sorting the business website, I AM EXHAUSTED!! We had a nice meal out on Sunday though at The Red Hot World Buffet¬†where my steroids could eat their little heart out, I was just a mere bystander haha seriously, I had 3 plates of starters, 1 plate of ‘mains’ which consisted of 3 different meals all seeping into one, bit gross to look at but tasted immense, and 2 plates of desserts!!! Yes, the all you can eat buffet was a HUGE success, so much so that we’re all looking to go back again soon for the night buffet, the sushi station wasn’t open for lunch and my mum and I are huge sushi fans so, it has to be done right?!

 

Oh, and lastnight I managed to lose a lense out of my glasses yesterday too, luckily I have contacts but my eyes are officially knackered. I feel like someone has blasted a hairdryer at them whilst holding them open with matchsticks. Ouch *whimpers*

 

That kind of takes us back to today, I’ve been a very bad blogger I know, I’m sorry but I have been very busy…..and feeling very sorry for my tired self haha but I’m back and currently full of chocolate frozen yogurt which I’m guessing may have more E numbers in that I normally find acceptable but I REALLY needed them (she say’s whilst getting ready to watch Obese: A year to save my life USA).

 

Anyway, ciao for now xoxo

What a week!!

Wow, I can honestly say this week has been crap! The boyf and I decided to boycott Valentines Day in the end, we bought cards but it just seemed stupid to go buying something for the sake of it, plus most things in the shops are literally pure cheese and really cheap looking. I still want to do the envelope idea though…..maybe for his birthday.

So Tuesday came and boy was I ill. Like, I literally thought I was dying. Ok, maybe I exaggerate there, but I honestly thought a hospital visit was imminent. The steroids cause all kinds of nasty side effects, one being night sweats/high temperatures but I woke up Tuesday with an awful fever. I literally had to crawl out of my bed to the bathroom, hunt out some old bottled water from my dresser and crawl back in to bed again. Mum had to grab me some fresh water so that I could actually function, food was not an option unless I wanted to be in agony because the emptiness in my stomach¬†was too much to bear¬†(steroids also cause serious munchies, you’d think that’d be fun but when hunger hits you don’t have time to waste, it’s agonising). Eventually I made it downstairs and throughout the day I took paracetamol to help my temperature. Back in 2010 I ended up in A&E because of the steroids, I had the same fever but I was shivering too, the started to treat me for¬†meningitis as a precaution because my immune system was so low but luckily, it was an infection with the Crohn’s and the steroids had just made me crash after a boost. This meant that this time I had an idea of how to handle what was happening, luckily, because this was the third time it had happened.

All I wanted to do was sleep Tuesday night, just a nice nights sleep, but at 1.41am it was time for full on projectile vomiting (I’m really sorry if you’re eating!) This time I was convinced I’d end up in A&E again, so curled up around my shower until the world stopped spinning. Luckily I dozed and come morning I felt much better, I just felt like I’d been kicked around my local town.

You’ll all be pleased to know though that I’m getting back on track now, it’s still a nightmare having more side effects than ever with the steroids but hey ho, as long as my throat calms back down again I’ll suffer for the cause, I doubt I’ll be on them for more than another couple of weeks now so. HAPPY DAYS

 

XOXO

Let the eating commence!!

Well, soon anyway! I went to have the endoscopy today and I was brave and wasn’t sedated again, which meant I could drive home too, always a bonus. I won’t bore y’all with the details but, meh, the doctor was right and it is the Crohn’s. On the plus side, this means that I’m not adding to a list of ailments, don’t you hate when that happens, like when you get a cold, and then you get achy joints, then headaches, you feel like an absolute donkey don’t you haha. So anyway, I’m on the steroids again which means that soon enough, I’ll be able to eat without sobbing and best of all, I’ll be able to get resume eating these lights of my life….

CAN.NOT.WAIT

Have I ever mentioned my addiction to Original Glazed? Seriously, is there anything better than a hot Original Glazed? Even a couple of days down the line, if like me you tend to HAVE TO buy a dozen at the time, I mean what’s the point in buying one, it’s just not cost effective is it ūüôā ¬†So, even when they’ve gone a little bit hard, just pop them in the microwave for about 5-10 seconds MAXIMUM depending on how super your microwave is, and hey presto, they’re as good as new.

I’ve also been spending a lot of time stalking Pinterest today in the hope of inspiration for something exciting to make in readiness for my feeling like Wonderwoman…I’ve shortlisted a few things but I’ll keep you posted!

I’ll love you and leave you now, but will leave you with an amusing picture I found on Facebook today…..

 

 

Over and out

Xoxo

 

Meeeeeeeeep

Well, I know I haven’t mentioned it on here but I have moaned my head off on Twitter about the sheer hellish heartburn I’ve been going through. We’re on day 21 now just to keep y’all in the loop! But, as I’ve very briefly mentioned before, I have Crohns which can trigger other kinds of nasties, so I thought I might just have a badass case of GERD (Gastroesophageal Reflux Disease). I’ve been drinkg Peptac liquid like it was pop, although I can’t stand water at the mo because of the immense pain. Anyhooo I managed to get in to see my Gastro doc yesterday, turns out he thinks that the Crohn’s may have decided to sit its merry little self in my oesophagus (my words there obviously, not his!) So, to say I’m totally fed up is the understatement of the year, so far. Tomorrow I have to go back for an endoscopy, for anyone who has had one of these before, you’ll feel my pain, anyone who hasn’t, pray you never have to. I wasn’t sedated last time so I’m going for the lot this time, sedation, numbing spray, if they offer it, I’m taking it. HELLISH. I am hoping that it is just really really bad heartburn though, we will see in the morning I guess. Wish me luck!!

To keep my chin up though, and so that I’m not leaving you all on a depressing note, I beg of you to watch the clip I’m about to post below. This is a dating show we have in the UK which is usually funny anyway, but this week was SPECTACULAR. It’s a 12ish minute clip but you will not believe this guy, he is…..well words failed me to be fair but boy did the nation laugh. At him, not with him.

Until tomorrow peeps. Ciao xoxo

New beginnings

Well, the last few days have been keerraazy, and not in a good way.

 

Friday morning mum went in for her gallbladder removal, she was really worried because she had an op years ago where they basically poisoned her with drugs and it took an ICU (Intensive Care Unit) doctor to come into her room and get her sorted, the reaction was so bad it was a potential stroke. So anyway, up at 5.30am on Friday I drove mum to hospital, we got ‘checked in’ so to speak to her room and just played the waiting game. The aneathatist came in to see her and assured her he’d keep a close eye on her (which he last one didn’t, he disappeared and no one could find out what to do to help my mum). The nurse said she was one of the first on the surgeons list so…..at 10am she went down to theatre, still so so nervous.

 

The op went fine and at 11.30am she came back up to the room, groggy¬†obviously but ok. I can’t tell you the relief!! 3 hours later however, she started to feel sick after water, but,¬†persevered so that she would be able to go home at teatime which is usually the case for such an op. It all went a bit wrong a couple of hours later though when she tried to eat. She had a slice of cucumber and a slice of tomato and that was it, she was getting the exact same hot flashes and sickness as before, this time though, she recognised the signs. Scary isn’t even the word. She was upset which got me upset, the nurse wanted to give her more drugs which mum didn’t want, but eventually they convinced her to try the anti-sickness drug that the aneathatist had advised them to try on her notes, just incase this happens. ¬†¬†Now I was only…..13 at the time of her last op so didn’t witness how bad she was,¬†apparently, she was a LOT worse than this before, she actually went green and really scared the nurses. This time, just very red. An hour later they moved her downstairs which is the floor you stay on when you ain’t getting home that night! Luckily she picked up after the anti-sickness jab and before I left her at 10pm had a slice of dry toast.¬†

 

Turns out, because my mum NEVER takes anything, not even so much as a paracetamol, her system just couldn’t really take the cocktail of drugs that they give you when you go under anaesthetic. The nurse told us each aneathatist has their own concoction of pain relief, anaesthetic and anti-sickness they give you when you go under (scary right?!). She’s home and well now thank the Lord, well, she’s not doing too well with the relaxing thing but she’s not sick anymore!

 

All of this made me really want to seize every moment of life because, you really just never know do you. I’ve decided to study beauty therapy and have passed my first 2 assignments with flying colours, so happy, then I’m going to do some local courses for eyelash extensions, tanning and of course, nails haha. I’m also going to crack on with the bucket list! The Nutcracker is on at the Alhambra in April so you just know that I’m booking that as soon as I have the money!

 

I just wanted to let y’all know why I’d been fairly quiet anyway, hope you’re all having better weekends!!

 

Ciao for now 

XOXO